📧 Newsletter 📲 Download App 🏷️ My Voice Tag

Waiver Funding Guide

Your Waiver Might Cover This App

Many Medicaid waiver programs allow families to request coverage for tools and resources that aren’t already being met by their services. Here is how to ask.

Email Jessie for Help ✉️
The Basics

What is an “Unmet Need”?

Every Medicaid Home and Community Based Services (HCBS) waiver has a category for services or supports your child needs but isn’t currently receiving. These are called unmet needs. In many states, families can request that waiver funds cover things like educational tools, communication supports, and digital resources — as long as they are tied to your child’s support goals.

Important to know: Every state’s waiver is different. Some states are very flexible about unmet needs; others have a strict approved list. The steps below work for most states, but your waiver coordinator is the definitive source for your specific waiver.

Autism Pathways may qualify as a support tool that helps your family navigate services, prepare for IEP meetings, and manage your child’s care — all of which tie directly to common waiver goals.

Step by Step

How to Request Waiver Coverage

This process works best when you frame the request around your child’s waiver goals and your family’s documented needs.

  • 1
    Find your waiver coordinator
    Their contact info should be in your waiver approval paperwork. If you can’t find it, call your state’s Developmental Disabilities agency and ask for your “waiver support coordinator.”
  • 2
    Request a plan of care amendment
    You don’t have to wait for your annual review. You can request a plan amendment at any time to add a new unmet need. Ask: “Can we add an unmet need to my child’s plan of care?”
  • 3
    Frame it around your child’s waiver goals
    Connect the app to specific goals already in your child’s plan. For example: “This tool helps me track observations and prepare for IEP meetings, which directly supports [Child’s Name]’s communication and education goals.”
  • 4
    Ask your child’s provider for a supporting letter
    A letter from your child’s therapist, developmental pediatrician, or case manager recommending a care coordination tool can significantly strengthen your request.
  • 5
    Get the approval in writing before subscribing
    Ask for the approval in your plan of care document before paying for anything. If denied, you have the right to appeal — your state’s Protection and Advocacy organization can help for free.
Word for Word

What to Say to Your Coordinator

Not sure how to bring it up? Here is a script you can read directly off the phone or copy into an email.

Script — Phone or Email

“Hi, my name is [Your Name] and I am the parent of [Child’s Name], who is on the [State] [Waiver Name] waiver. I am reaching out because I would like to request an unmet need amendment to our plan of care.

I am using a care coordination app called Autism Pathways that helps me track daily observations, prepare for IEP meetings, navigate Medicaid and waiver services, and manage our providers. This directly supports [Child’s Name]’s goals around [communication / education / community participation].

The app costs $9.99 per month. I would like to request that this be added as an unmet need. Can you tell me what documentation you need from me to move forward?”

💡
Tip: If they say no right away, ask: “Is there an appeal process, or is there a different category this might fall under?” A soft no is often just a “I need to look into this” in disguise.
Things to Know

Tips That Make a Difference

📄

Document everything

Keep a paper trail of every request, email, and phone call. Date and time stamp your notes. This is your evidence if you need to appeal.

👩‍⚕️

Get a provider letter

A one-paragraph letter from your child’s therapist or developmental pediatrician recommending a care coordination tool goes a long way.

📅

Don’t wait for annual review

You can request a plan amendment at any time. You do not have to wait until your next annual review to add an unmet need.

🗺️

State rules vary widely

Some states have a pre-approved list of unmet needs; others give coordinators more flexibility. Ask your coordinator what category fits best in your state.

Need Help?

You Don’t Have to Figure This Out Alone

Talk to Jessie Directly

Book a 1:1 support call or send me an email. I will help you figure out the right approach for your state and your waiver.

Book a Support Call →
Disclaimer: Jessie Fielding is a parent advocate and the founder of Autism Pathways. She is not a licensed attorney, social worker, or Medicaid specialist. The information on this page is based on personal experience and research and is intended for general guidance only. Waiver rules vary significantly by state. For legal or benefits advice specific to your situation, contact your state’s Protection and Advocacy organization — they provide free legal assistance to people with disabilities.
Scroll to Top